Infant Development Study

Welcome to the Neurodevelopmental Disorders Lab at the University of South Carolina! Our lab is dedicated to understanding the development of infants and children with neurodevelopmental disorders. Our current study aims to investigate early development for infants with fragile X syndrome and the fragile X premutation. This longitudinal study aims to characterize the relationship of physiological arousal to development across infancy in children with FMR1-associated conditions.

We are currently recruiting infants that:

  • Have fragile X syndrome (12 months or younger)
  • Have fragile X premutation (12 months or younger)
  • Are experiencing neurotypical development (6 months or younger) 

What does study participation entail?

  • Assessments (lasting 2-4 hours each) at 6, 9, 12, and 24 months either at your home or at the University of South Carolina
  • Summary reports of your child’s development by infant development experts
  • Compensation for participation (up to $425 total)

Visits will consist of direct, in-person assessments of your child’s developmental skills, as well as interviews and questionnaires with you, the parent(s), regarding your own experiences and perceptions of your child’s development. Assessments are scheduled at a time convenient for your family, including weekends and evenings. The study also includes an optional blood draw component to assess molecular-genetic markers associated with the FMR1 gene.

Interested in Participating?

If you would like to learn more or are interested in enrollment, please complete our interest form or contact us at [email protected] or 803-777-5676!

Frequently Asked Questions:

How are assessments scheduled?

Our assessment team works with you to find a day and time that works best for you based on you and your child’s availability and preferences, accommodating work schedules, nap times, feedings, etc. We offer flexibility in scheduling, including offering times on weekends and evenings.

How rigidly do we have to follow the target time points?

Where do assessments take place?

What if I only want to participate once or twice?

What if I plan on moving?

Are there costs associated with participation?

Will you diagnose my child?

Is my personal data kept confidential?

Will we be able to see the results and how will they be relayed to us?

Will I receive monetary compensation for participation?

Are blood draws required? Why is a blood draw requested?

Learn how you can take part in our research