We are recruiting families to participate in a research study on development in children with Williams Syndrome! Our study aims to improve understanding of the relationship between heart activity and development in children with Williams syndrome.
We are currently recruiting children with Williams syndrome between 3 and 6 years of age.
Where does this study take place?
This will be completed virtually from the comfort of your home!
What does study participation entail?
- A virtual meeting with a researcher during which your child will watch videos while wearing a heart rate monitor (1 hour)
- Questionnaires on your child’s development (45 minutes)
- Compensation for participation ($50 total)
Assessments are scheduled at a time convenient for your family, including weekends and evenings.
Interested in participating?
If you would like to learn more or are interested in enrollment, please complete our interest form or contact us at [email protected] or 803-777-5676!
Frequently Asked Questions:
How are assessments scheduled?
Our assessment team works with you to find a day and time that works best for you based on you and your child’s availability and preferences, accommodating work schedules, nap times, feedings, etc. We offer flexibility in scheduling, including offering times on weekends and evenings.
Where do assessments take place?
Assessments are virtual and take place from the comfort of your home!
Are there costs associated with participation?
There are no costs associated with participation. All relevant research materials will be shipped to your home, and the lab will directly pay for the cost of mailing the materials.
How is heart rate collected?
Your child will be asked to wear a small heart rate monitor. The monitor will be attached to your child’s chest using stickers on each end (similar to a band-aid). There are no wires, and your child will be free to move about! The sensation is similar to wearing a bandaid.
Is my personal data kept confidential?
Your data is always kept confidential, and your name and personal information would never be published in a research study or poster presentation, in keeping with the regulations of our university’s Institutional Review Board. The de-identified data you provide is extremely valuable and is used to publish papers and present at conferences throughout the year.
Will we be able to see the results and how will they be relayed to us?
The data we collect is also used to publish papers and present at conferences, and our publications are available on our website or can be sent to you upon request. We often also highlight findings from our publications on our website, social media pages, and annual newsletter.
Will I receive monetary compensation for participation?
Yes! Families receive $50 for participation. Following each assessment, families will be emailed a link to receive a gift card (Visa, Amazon, Walmart, or Target).
